Neurofibromatoses - 25 Studies Found
Suspended |
: PTC299 for Treatment of Neurofibromatosis Type 2 : Neurofibromatosis 2 : 2009-05-28 : Drug: PTC299 PTC299 will be administered orally at 100 mg/dose twice per day for up to 1 year or until t |
Completed |
: Everolimus for Treatment of Disfiguring Cutaneous Lesions in Neurofibromatosis1 CRAD001CUS232T : Neurofibromatosis 1 : 2014-12-12 : Drug: Everolimus Everyone in the study will receive Everolimus at a starting dose of 10 mg daily and wil |
Completed |
: NF1-Attention: Study of Children With Neurofibromatosis Type 1 Treated by Methylphenidate : Neurofibromatosis Type 1 : 2005-09-09 : Drug: methylphenidate |
Completed |
: Phase II Study of Everolimus (RAD001) in Children and Adults With Neurofibromatosis Type 2 : Neurofibromatosis Type II : 2011-08-17 : Drug: Everolimus (RAD001) , Afinitor® Everolimus will be provided by Novartis. Everolimus is formul |
Completed |
: Spinal Abnormalities in Neurofibromatosis Type 1 (NF1) : Neurofibromatosis Type 1 : 2009-02-12 |
Completed |
: A Phase II Study of the mTOR Inhibitor Sirolimus in Neurofibromatosis Type 1 Related Plexiform Neurofibromas : Neurofibromatosis Type 1 : 2008-02-20 : Drug: Sirolimus This phase II study will evaluate children and adults with neurofibromatosis type-1 (NF1 |
Completed |
: An Implant for Hearing Loss Due to Removal of Neurofibromatosis 2 Tumors : Neurofibromatosis 2 : 2002-01-30 : Device: Penetrating auditory brainstem implant |
Enrolling by invitation |
: Analysis of Plasma for Diagnosis and Follow-up of Neurofibromatosis Type 1 : Neurofibromatosis 1 : 2016-01-15 : Other: Blood sample 10 mL venous blood sample for analysis of plasma |
Completed |
: Internet Support Group for Parents of a Child With Neurofibromatosis Type 1 : Neurofibromatosis 1 : 2014-05-31 |
Completed |
: Acceptance and Commitment Therapy for Adolescents and Young Adults With Neurofibromatosis and Chronic Pain : Neurofibromatosis : 2012-06-29 : Behavioral: ACT Workshop The ACT workshops will consist of a patient program and a corresponding parent |